Showing posts with label Alba. Show all posts
Showing posts with label Alba. Show all posts

Sunday, 16 July 2017

A tonne of bricks...

"I'm going to ride a motorbike when I'm bigger!" That was it, a huge tonne of bricks dropping onto my chest. Obviously I didn't tell him that he probably wont. Unless he's a passenger. But even then, I probably wouldn't let him anyway. With "big school" becoming imminent as opposed to next year, or a few years, it's in less than two months, I have started to realise how Jacobs vision is going to start affecting his life more and more. Last night we were talking about our friends little girl who'd been to her school disco, Jacob said "I want to go to a school disco!" I said "Do you? Do you think you'll like it?" And he said "no, it will be too dark and loud. I won't like it." That's 2 heartbreaking realisations in 12 hours. No school discos, no riding a motorbike. What next? Obviously I know none of this is set in stone, and who knows what will be available to Jacob in the future, but for now, they're a no. And it isn't fair. 

Part of me cannot wait for Jacob to start big school, I know he will love it. But the anxiety I feel over him starting makes me want to keep him at home forever. Or at his preschool. Because I love them for how they've treated my baby boy and can't imagine anywhere looking after him the way they do. He got into the school I really wanted which was amazing. He has a huge Education and Healthcare Plan (EHCP) that the school, preschool and Jacobs Visual Impairment teacher put together along with Rich and Me and it covers absolutely everything from starting the day, to coat peg positions to where he will sit in the classroom. So I know they know all they need to know. And once Jacob starts, they will see his isn't what he seems on paper. On paper, I think he can be absolutely daunting. It isn't until you meet him that you realise how he doesn't actually let his sight or lack of, affect him. 

I know it's been a LONG time since I last wrote, Jacob is still stable. Our hospital appointments are 3 monthly at the moment and hopefully will only get further apart. We've had some behaviour troubles with Jacob but I think it's down to all the change going on, leaving school, starting big school. Alba is a lot more "involved" now so he absolutely tortures her and has become very protective of all of his stuff. Another tricky phase in life with two toddlers I'm sure. They have brief moments where they're the best of friends and it's absolutely lovely. But they are few and far between. We've also had chicken pox since the last post, but they both coped really well with it. Thank goodness! I will write again soon! 

A few photos from recently; 













Thursday, 24 November 2016

Hello, only me again!

Still not too good at keeping up to date with this am I!?

We've had some wonderful news since i last wrote, Jacob had a check up at the end of September at The Royal London Hospital, and he is cancer free!!! Basically, the swelling of his optic nerve caused by the Intra-arterial chemotherapy, cut off the blood supply to the tumours and they've literally shrivelled up and died. So, an awful side effect which wasn't very common has turned out to be a brilliant side effect! Retinoblastoma is quite different to other cancers in the sense that they don't ever get the "all clear" in all its glory. He will still have to have regular checks as there is always a chance of a relapse, but his consultant Mr Sagoo was rather confident that it is very unlikely that we will see a new tumour grow now. This was obviously very unexpected news. I actually had a bad feeling about this appointment. Shows how much I know!!! I obviously spent the next few days in shock, crying everytime someone said "that's amazing news isnt it!?". Rich said he felt like he was floating, which I think must have been how I felt too. It is such a strange feeling. Obviously besides the first 12 weeks of his life, hospital appointments and cancer treatments are all we knew with Jacob. So to know that life will potentially return to some sort of normal is amazing. And scary. I feel very lost and almost like it's starting a new chapter. Which it is. I just don't know what about. We've not done this part of the story before. We didn't think we ever would. I'm definitely rambling.

Jacob is absolutely loving preschool. He looks so adorable in his uniform. He has hot dinners everyday and I have to make sure I know what's on the menu for the week as he asks me every morning what he's got that day! Getting out of the door by 8.30 every morning can be challenging, especially if he's having one of his less cooperative days. But we are doing it! He's learning so much, and his new key worker is lovely, as are the rest of the girls. They've gotten Jacob a desk lamp for when they do writing etc as he has one at home that he uses when colouring in and we found it helps. I'm one of those annoying mums though I think, as I ask so many questions and on Friday I asked if there's anything I can do at home with Jacob to help him along and to feel more confident as the last thing I want is for him to fall behind. But his nursery nurse was amazing and gave me a few tips and told me a few things they're doing. Can you believe they learn phonics at this age!? I love that he's officially learning now. I know they "learn through play" etc but I absolutely love him coming home and surprising me with things he has learnt. He's informed me that inside his head, is his skull and inside that is his brain. He knows where his spine is and where his heart is, "it's in my chest mummy!" Where is my little boy!?
I've started looking into primary schools. (I actually can't even talk about this without crying.) I have a pretty good idea of where I want him to go, and can't believe that we have to apply by January. FULL TIME SCHOOL?! WHAT! It really does just fly by doesn't it?
My second little person, I've nicknamed her Reagan. From the Exorcist, if you're unsure. Because she is 100% possessed by some crazy little devil woman. She is nuts. Possibly the naughtiest child I have ever known. She's gone back to hating everyone, except me. Yay. She screams and throws/launches/attacks anything within a two metre radius of her tiny, little self if she doesn't get her way. Or I go out of sight. Or just for fun. The attitude is a whole other level of teenager. And she is EIGHTEEN MONTHS OLD. I did discover that her father had a horrendous attitude and temper as a child, so we are blaming him for this one. My mother said I was a delight. Obviously. Haha. Again, I'm sure it's just another phase. Not that it justifies the launching herself backward in a strop, especially when it's onto concrete in the street. Because then, I just have to get her up and give her a cuddle as she has legitimately hurt herself. You think she would learn, apparently 18 month olds don't quite make that connection yet. Don't get me wrong, she is an absolutely hilarious, adorable, loving little thing. To me. And sometimes Jacob, when he doesn't push her over because she touched his cars. Sometimes she can't win, poor doll. She does sleep amazingly though which is great.



How cold is it now?! I got the kids really cute coats this year. I wanted a really gorgeous coat from Next for Alba but it wasn't very practical so she's got a khaki green parka like mummy. Jacobs got a gorgeous mustard parka from Next. I want it in my size!

We are back at the Royal London Hospital next week for Jacobs first check up since we got the amazing news so fingers crossed everything is still the same!!

Tuesday, 16 August 2016

And the award for worst blogger ever goes to...

Me! So, two kids that don't stop moving from the second they wake up in the morning, (usually 6am, 5am lately.) until the second they go to bed at night, makes it very difficult to sit and write these blogs. And I'm not even exaggerating. They're both like little Duracell bunnies that get high on oxygen. It is EXHAUSTING. And to make it even more fun, if Alba even so much as blinks at Jacob, he totally loses his shit. I thought "Ah, 2 year age gap, they'll be the best of friends, they'll play together so lovely." Nope. I am an idiot. So, the blog gets neglected. Don't worry, it's not the only thing I've forgotten about. My hair, my eyebrows, I can't remember when I last cleaned my bathroom with something other than baby wipes. The dog probably hasn't had an affectionate cuddle or human contact that wasn't being shoved out of the way/tripped over/being rode by a small human for months. I'm not even sure Rich still lives here. I forget to speak to him lately too. Okay, that last one was a joke. He lives here, I just don't talk to him.

Anyways, besides all that, yesterday was 3 years since D-day. Or diagnosis day. Or the start of Jacobs fight. Whatever you prefer. It was also Rich's birthday, but I also forgot about that. Not really. He got a Colin the Caterpillar cake of course. This year is the first year it hasn't gotten me down. I thought about it of course and still remember it like it was yesterday. But  I didn't sit moping about it. I normally feel really anxious leading up to it, apparently it's quite normal. But it was lot less this time. Just seeing Jacob now, a crazy three year old is so different to what I thought he'd be like now. I really wish the me then could have come and met the me now. But then it wouldn't have been so much of a journey would it?! 

Jacobs had two check ups since the last blog. His vision is slowly improving. The IAC has left behind alot of damage and they've seen slight improvement each time. His retina has finally reattached but we are just playing the waiting game on the vision. He can see around two metres in front now which has dramatically improved from the 20 centimetres he could see 2 months ago. He does brilliantly at home and is slowly starting to be able to point things out in books again. He still doesn't manage depth or change in surface well. So steps, kerbs, shadows. He stops and panics alot. Steps, he tries to sit down and shimmy down them. He did this on the underground last week and I absolutely went into meltdown over the germs. He has to be carried alot in new or unfamiliar places too. It could improve, it could not. He's still not fussed over his iPad, and he only likes things on TV that he has seen a hundred times before. Which is Peppa Pig at the moment. I hate the spoilt little brat. I wish one of her little mates would give her a slap.
The good news is that Jacobs tumour is stable still. As tough as the vision thing is, if it means he is finally free of this nasty little disease, then it's worth it.

Jacob starts preschool in September, he will be going four mornings a week. He's moving up from the toddler room! I'm so excited as it will be great routine for him and I know he will love it. He's going to have a key worker all to himself which is brilliant, so I know he will be well looked after. They normally have around 8 children to one adult, but his nursery have got some additional funding for Jacob so he has the best care possible there. I was really upset at the thought of him having "extra help" at first, but at the end of the day, if it alleviates pressure on the nursery and makes Jacob more comfortable then that's fine with me. I wouldn't want him to go anywhere else and I love the girls there and know they'd come to me if they had any questions or there were any problems. I'm also looking forward to spending some time with Alba, just the girls! Jacob isn't really into baby groups anymore and all the ones Jacob was going to at Alba's age, he isn't interested in, so she kind of misses out. So I will definitely be taking her to a few groups. Although I'm sure she will just cling onto me for dear life when approached by a stranger!

We've had some glorious weather here too! Here's a few pics from recently, we've had a few little adventures to the seaside and the Natural History Museum too! Oh and to see Queenie! 

Last day at nursery! 












Hope you've enjoyed this little update. I'd say I'll try and keep these coming regularly, but I can't promise anything. Maybe my kids will start enjoying quiet, still activities soon...

Wednesday, 15 June 2016

Slowly getting better...

It's been two weeks since I last wrote, shortest gap in a while! Haha. Jacob finished his steroids a few days after my last post, and he was so unhappy for a fair few days afterwards. Luckily, it was half term so he didn't have to go to nursery, but I wouldn't have sent him in anyways to be honest. I managed to start putting his steroids into his porridge in the mornings which was great. And his appetite was still crazy for a fair few days afterwards. I really wanted to get him weighed but just never got round to it. And then last week he got a sickness bug so probably lost everything he'd gained anyway! The last three or four days, I can say he is finally back to himself. I didn't think it would ever come, the tears and screaming was so draining. I was wishing the days away. He's still a bit up and down with some people, if Rich picks him up from nursery, he's quite funny with me for a little while when he gets home. And he's still being mean to my sister but I think he secretly knows how much it's winding her up. Haha.


So, Alba turned one on the 4th! We bought her a wooden play kitchen for her birthday, it was obviously for Jacob too but we had no idea what to get her so went with that. And oh my goodness, I love it. Screw the kids, I've played with it more than anyone! I sit there arranging the fridge and counters, putting the casserole dish in the oven. The fun is endless! Evidently, I need to get a hobby. Its so cute though, and was only £65 from Asda. The wooden one I originally wanted was nearly £200 and I just couldn't justify it. Plus, I wouldn't have even let the kids touch it! Jacob was really good on Alba's birthday, I though he'd want to tear all of her presents open himself but he was so sweet, giving them to her and helping her open the kitchen. (Which I wrapped after spending 4 hours building the thing!) We spent the day at home and had everyone over for dinner in the evening. 






We all went swimming on Sunday for the first time, I've taken Jacob before and we went on holiday of course, but all four of us went for the first time and it was really good fun. I've decided I'm going to try to take Jacob every Sunday. He's so confident in the water which is great, and I want him to learn how to swim soon! I was quite alot older when I learnt and always said my kids would learn while they were young. I don't think actual lessons would be very good for him at the moment, especially while he has poor vision. So for now, we will take him and try to teach him the basics then look into it more when we know what's going on with his sight. He seems to be slowly improving. Or we are just getting used to it. Somedays he seems so much better, and others worse. It's so hard to tell. 
We are back at The Royal London next week to see if the swelling has gone down. I don't know what to think and to be honest am trying not to either as it is so easy to drive yourself crazy.

Look at this pudding. I couldn't get any photos of Jacob as he was like The Flash, running around like a loon.


We are finally back to calm nursery drop offs too, which is so nice. He hasn't cried this week and even went strolling in himself yesterday which was great. I requested that the Visual Impairment Teacher stopped going in to see him for the time being. It upset him so much and made him not want to go to nursery which has never been a problem. And while he is the way he is, I'd rather he felt calm and secure. And the nursery staff are just amazing with him. I know if there were any concerns, they wouldn't hesitate to tell me.




This sunshine does wonders for your kids mood too doesn't it!? Jacob just spends all day outside. Parenting is so much easier in the summer!! Although, Alba has started to climb and the girl is sending my anxiety through the roof!!! Jacob thinks it's brilliant. "Mummy look at Alba!!! She's such a brave girl!!!" No, Jacob, she's crazy!




Sunday, 17 April 2016

Round two.

Intra-arterial chemo number two is done. After being delayed by three weeks, Jacob finally had it this Wednesday. He had a throat infection three weeks ago which delayed his EUA by a week, then there wasn't a slot on the next week at GOSH, so it was pushed to this week. Lots of messing around and chopping and changing Rich's days off etc. But we got there in the end. Not without some drama along the way... Jacob got a nasty fever at the beginning of last week and it didn't want to come down, so we were admitted to our local hospital. They wanted to make sure he was well for Wednesday so started IV antibiotics as a precaution. We ended up staying for three nights, then Jacob was sent home with his cannulla still in and we had to go back for IV antibiotics for the next two mornings. The worst thing now is that Jacob is so traumatised from a blood test he had done at our local hospital that was not done how he is used to, and by an extremely "not child friendly" doctor, he becomes a screaming, squirming mess. We haven't seen the same doctor since but I was so rude to her that I think she would probably avoid me anyway. Don't get me wrong, we are extremely lucky to have the NHS, but when you have been going through this with your kid for nearly three years, you know what's going to work for him and what isn't. And pinning him down and telling a poor student nurse to squeeze his hand until it turns purple isn't going to work. It was awful. And when Jacob screams "please mummy, no bloods! Please!" like he is being tortured, well, you are going to have a few things to say. Other than the needles, Jacob was brilliant and actually thought he was on a bit of a holiday. All he wanted to do was go down to the hospital restaurant! The doctors couldn't actually find a cause for his fever as all of his bloods came back clear but at least he was well for his hospital appointment.
                  


They have a sensory room at our local hospital which is fab and it kept Alba happy for ages!


At Jacob's EUA two weeks ago, we got the news that the tumour has responded really well to the first round of treatment which is amazing! And after the first lot, we knew what to expect so went in Wednesday morning feeling a bit more prepared. With the intra-arterial chemotherapy, the children can sometimes has a reaction to the drug on the second course of treatment, the doctors do not know why or why it is the second one when it usually happens but their blood pressure can drop very quickly and they need adrenaline. It happens to around 40% of children. And of course Jacob was in that 40%. It is so so scary when you think of what could actually happen, but the doctors are so prepared for it now that they can see the signs before the blood pressure starts to drop and react quickly. He was so spaced out when he came round, no tears, no screaming, just very drowsy. It absolutely breaks my heart to see him like it, mainly because he just looks so cute and relaxed, and also because it shows what he's been through. How exhausting it must be for him. How rubbish he must feel when he wakes from his "special sleeps." After his 4 hour bedrest, we made our way home. Which again, was rush hour on the tube. We had to wait 45 minutes for a train that we could even fit on. Commuters are animals! I got trampled on and shoved so much. It honestly baffles me how people do it every single day. I don't think there is enough money in the world to make me do that everyday.

Jacob was sick again today, which confirms that the last time definatly wasn't a coincidence. It's so unusual apparently but I will definatly be giving his nurses a call on Monday.


Jacob finally got his new eye from Moorfields last week too. And oh my goodness, it is amazing. I am so impressed with them. I actually cried when it was put in. It looks so real!!! 

Not the best photo, but getting a toddler to pose for a picture isn't the easiest of tasks!


Since I last wrote, I've also gone back to work at Topshop! I'm only working four hours on a Saturday morning, but it's a lovely little break for me and I get my staff discount again which I can't complain about! I absolutely loved my job as Visual Merchandiser before I left to have Jacob and would absolutely love to return to it one day.

Oh, one more thing, Alba has started to take steps! My life is about to get alot more stressful, like I need that!!!

Sunday, 21 February 2016

Back at it.

Jacob had another check up on Wednesday where we received the news that the stubborn little tumour in his left eye isn't giving up and the retinal detachment isn't getting any better so he will need further treatment. As cryotherapy is no longer an option due to the damage it is causing to his eye, they are going to try either the radioactive plaque, which we knew was an option. Or intra-arterial chemotherapy. That nasty little C word again. There's alot of those isn't there!? There are a few side effects with IAC, not as many as regular chemotherapy but still. IAC is when a catheter is inserted through a vein in the groin and fed up into the affected eye. The vein can collapse or spasm which stops the catheter going in and therefore the procedure will be cancelled and then they try again maybe the following week. It can also cause Jacobs blood pressure to drop very quickly and then they require adrenaline. Which is the scariest part for me and why I am leaning much more towards the plaque. They can also lose their lashes, eyebrow and sometimes some hair at the front and it can cause their eyelid to temporarily droop but again, it is so different for everyone. I had totally prepared myself for the possibility of the plaque so when Jacobs consultant said this, I wasn't overly shocked. It was when the chemo was mentioned again that I panicked. We don't find out until Monday afternoon what they've decided will be the best course of treatment. I have tried not to think about it too much. Plus the babies and me all have a rotten cough and cold so we've been tackling that. Alba has slept through the night the last two nights though and I'm hoping it isn't because she is poorly. Jacob has also stayed in his bed all night too. He normally ends up in with us and he started demanding to lay on the outside of the bed on my pillow which is fabulous. I'll be wishing for sleepless nights again when they grow up and dont want to cuddle me.


Tuesday, 2 February 2016

Life with two...currently.

I am not going to lie, two kids is hard work. A toddler going through the terrible twos is hard work. A high maintenance, sensitive 7 month old is hard work. Both of them together...well it's really hard. I have a newfound respect for single parents, and anyone with more than two children. It may be the age gap, there is 2 years almost to the day between them. I can already see my hands are only going to get more full. But, I love it. I love the chaos and I love that I have two amazing little characters for children. Obviously there are plenty of days where I want to hide in a cupboard with a straw in a bottle of wine, but then one of them will do something that will remind me that they are just children and everything they do is learning. My sister thinks I am insane and we have totally put her off of having anymore children. I'm always busy. If I could change one thing, it would be that we had a cleaner. The only reason we don't is because I couldn't bear someone picking up after me and I'd feel like I had to clean before they came. Oh, and I refuse to pay someone to do something when there is no reason that I can't do it myself. I just have to learn to manage my time better. I paid someone to professionally clean our oven before Christmas because I just couldn't get it clean, and I begrudged that. Although, it looked amazing after. I didn't want to use it, but Christmas dinner wasn't going to cook itself.




My days are just non stop and I honestly don't think I sit down until well after the kids have gone to bed. Which I'm sure is the case for most parents. 7-10am and 4.30-7.30pm in our house is just chaos. Jacob doesn't like to do anything he's asked at the moment, getting dressed is the top of the list. And Alba isn't the best sleeper, day or night. So she is tired alot. But also refuses to nap for more than about 30 minutes unless we are out and about with the pram. Jacob very rarely naps at all now. I think he's worried he will miss out on something if he sleeps while Alba is awake. He has been very jealous and I think he has found it very hard adjusting to life with a sibling. Alba says "mum mum mum" when she's crying and he says "No, she's my mummy!!!" And if I'm holding her and he wants a cuddle, he won't share me. He says "No, Alba on floor!" It's so hard as I know we have spoiled him with attention and so have most of our family. As much as I say we didn't, we probably overcompensated because of what he was going through.

The walk to nursery is usually a stressful affair. Jacob waddles along like he wants the snails to beat him there or screams most of the way that he wants to go to the shops. Recently, he wanted to ride his scuttlebug to nursery but wanted to go the wrong way, which ended in a full blown tantrum and being 20 minutes late for nursery. The worst part is that when we actually arrive at nursery he runs off and leaves me at the door! He goes to nursery Monday, Tuesday and Friday afternoon. Normally on a Monday, I'll pop into town and do some food shopping or potter around the shops. And then Tuesday I will try and get a few things done in the house but most of the time I end up playing with Alba or fighting to get her to have a nap! Fridays, Rich is usually home from work so I'll take this time to try and get the housework done so the weekend is ours to do what we want.

The nursery run tantrum.



We swapped the kids into the bigger room over the weekend. I was all excited until we'd finished and then it hit me that Alba wasn't in our room anymore. Jacob went into his own room at 3 and a half months old as he used to wake at the tiniest sound and would thrash about in his Moses basket like a caged animal. So with Alba being 8 months old, it's alot later than when Jacob left our room. It's been tough as I can't leave Alba to cry for very long as she would wake Jacob and vice versa. We've had one of them in our bed every night so far. Hopefully they will get used to each other soon. Bedtime is a nightmare as since Jacob gave up his dummy, he will not go to sleep unless someone is sitting with him, and Alba has always needed someone to stand with her otherwise she screams until she is sick and choking. Everyone says about letting her cry it out, but I have tried it with her and it is awful. She is relentless. And I can't bear to see her in such a state. With Jacob, controlled crying was amazing. A life changer. But again, I tried to leave him recently to go to sleep on his own and he got into such a state. And then it occured to me that there will soon be a time when they won't want to be cuddled at all, or have snuggles in our bed. So I decided that the back aches and kid dribble all over me is worth it. And I'll cuddle my little people to sleep if that's what they want. 








Sunday, 24 January 2016

It's been a while...

I've started writing about 20 blog posts and never get round to finishing them. So thought I'd better give it another go. New year and all!!

Soooo much has happened since I last wrote. The weather has gone from beautiful heat to bloody freezing! Alba is now an official crawling, jabbering, food throwing little person. Jacob is in nursery for 3 afternoons a week and has developed the attitude of a highly emotional teenager. And I've cut all of my hair off as loads of it fell out anyway. Oh post partum hair loss I love you. Oh, and I turned 30, but no need to talk about that.

Alba is now 7 and a half months old. She started crawling at the beginning of December and has been unstoppable since! I started weaning her quite early as her reflux was awful even with dairy free milk and medicines. It did reduce the amount of sick she was decorating the house and her clothes with so that was great. I changed her back to Aptamil follow on milk around a month ago as she was switched to the second stage dairy free milk and was projectile vomiting whole bottles so something in it didn't agree with her. I am absolutely loving weaning with her. I am a bit more carefree about what she eats compared to how I was with Jacob. Mostly because its sometimes easier for her and Jacob to have the same thing. So she has had nuggets and alphabites waaaaay before Jacob did! Oh and a few chocolate buttons here and there. *insert hands over eyes emoji here* She absolutely loves avocado and cheese which is great. Although I have noticed she's a bit of a lazy eater. I will offer her something and she will just hold her mouth open for me to hold it while she chews as opposed to holding it herself. She has her two bottom teeth already too.

Jacob started nursery in October and he loves it! I really thought I was going to have so much trouble with him going and settling in well. But his nursery are fantastic and he did about 4 weeks worth of settling in sessions which slowly increased in length until he started properly. He does 1-5 three afternoons a week. He is absolutely shattered by the time he gets home but that doesn't stop him waking up at crazy o clock and climbing into our bed! Both babies sleeping is very up and down but that's probably a whole other blog post. Ha. Jacobs speech has come along so much and you can have full conversations with him and there is very rarely something he says that I don't understand. AND...he is wearing PANTS!!! Only in the day and we are still having a fair few accidents but we are certainly getting there. He refused to use the potty at home but did at nursery to which I was obviously like "well we are doing this at home!!" It took a while but one day it just clicked. I did slow down over Christmas as it was obviously very chaotic but when the new year started he asked to wear pants and that was that. He's so tiny though, I had a nightmare finding some to fit him, but luckily Asda start their pants at 12-18 months which fit my little string bean fine.

Christmas was amazing, we stayed at home just us four, which was very calm but with Alba on the move too, I wanted to stay quite chilled out and not have to worry about chasing her around too much or her being trampled by the family. Haha. The kids got absolutely spoiled and I am still trying to find homes for the piles of toys. Very stressful when I hate clutter and mess.  
Two days before Christmas, Jacob had a check up at The Royal London Hospital, and unfortunately his tumour had relapsed again which was absolutely gutting. He had more cryotherapy and a nice sore eye in time for Christmas. He didn't let it hold him back though. He still had an amazing time and was so excited when he woke Christmas morning and "Father Pissmass" had been! We were back at RLH two weeks later and the tumour had responded well so no more treatment was required but the previous treatment had made his retina detach slightly so we are back on Wednesday to check that it's reattached and to hope the tumour has stayed stable. If not, he will be having a radioactive plaque as his next line of treatment as all of the cryotherapy has started damaging his eye and its too risky to carry on as he only has the one. I'll write more about that if it happens. But obviously fingers crossed it doesn't.

I could write and write with everything we've been upto the last six months but I'll be here forever. I plan on writing a bit more regularly again now. Plus Rich keeps shouting at me too as well. So keep popping back!

Here's a few pictures of what we've been upto recently... Although if you follow me on Instagram, you've probably already seen them!

So I thought I'd do this which actually shows how much of a crap blogger I am...the left is August, when I last wrote a blog and the right is now. Growing up so fast!




I say let's not talk about turning 30, but I actually had the most amazing birthday weekend and was thoroughly spoilt.


A few from Christmas: 







Jacob was given tickets for Disney on Ice at the O2. It was absolutely amazing!