CHECT Members Weekend.

So the sleepless nights have continued, and I honestly haven't had the energy to write a blog until now. And to be honest, we haven't done much where Jacob has been so grouchy from lack of sleep, which has therefore made me grouchy. I tried the controlled crying to get Jacob to stay in his cot after coming into our bed for two weeks, on the first night, I gave in after half an hour of absolute blood curdling screams (our neighbours definitely hate us) and on the second night, he went back off on his own after about twenty minutes. But was up at 5.15am. And the next day was a ridiculous o'clock start again. I really don't know which I prefer! In our bed he will sleep until around 7.30am which is glorious, but I get hardly any sleep due to the little size 3 tootsies in my back/ribs/eye.

We went away to the CHECT members weekend this weekend gone and I knew there was no point in taking a travel cot as Jacob wouldn't sleep in one the last time we went away, so we just accepted that he would be sleeping in with us and hope that coming home would be a new start to him sleeping back in his own cot.
The weekend was at the Northamptonshire Billing Aquadrome holiday park. I have never stayed in a caravan in my life so didn't really know what to expect. Sophie, Ross, Teddy, Aaron and Lou came too so we had one of those huge static mobile home things. It was so cold in there! And I didn't really pack as well as I should have, I just launched loads of stuff into a bag and hoped that would do. What I didn't pack, and really wished I did, was socks. I had freezing cold feet both nights. Caravans should carry a cold warning label. Or I should just think about where I'm going and pack more appropriately. 
It was really lovely to see some of the families we've become familiar with over the last year or so. I met a lady at the Carrots Nightwalk last year who's little boy had an enucleation, and she made me feel so much better about the whole situation and I hadn't seen her since so it was really nice to catch up with her too. There was also a family who we last saw when they found out their little girl was to have her eye enucleated, which was obviously a huge day for them, and it turns out they were staying in the caravan next to us which was brilliant. I had asked about their little girl everytime we were at RLH but because of patient confidentiality, they wasn't allowed to tell me how she was doing. But she seemed absolutely amazing, and she really took a shine to Jacob which was adorable. 

The weekend was really overwhelming in a way. It was like everyone had this mutual respect for each other because you all know what the other has been through or is going through. Everyone was so friendly and you all had something to talk about together. 
On Saturday, CHECT arranged for everyone to have dinner together in the main venue and then it was followed by an open mic night. It was amazing. All of the girls, nicknamed the "CHECT Princesses" performed "Let it go" from Frozen, which Jacob was absolutely mesmerised by. They had most of the people in tears, including me obviously. I was sobbing by the end, I had to rush back over to our table to hide because I literally couldn't stop. It was so amazing to see such a brave group of girls. Most of them had an artificial eye, and it made me feel so positive for Jacob. They were so confident. Since Jacob had his eye removed, I constantly think about how he will grow up. Will he be confident? Will he let it hold him back? And if those girls are anything to go by, these kids are so brave, I have nothing to worry about with my little bulldozer. 
The CHECT staff also performed "Like A Prayer" which was brilliant! It wasn't until this weekend that I realised that the charity actually only have 9 members of staff. It is unbelievable how much difference such a small group of people can make to so many families. Lesley, our support worker is like a family member now, she is absolutely amazing and you could ring her up for any little thing and she will always have time for you. Jacob actually held his arms out to her this weekend too which was a big deal! He doesn't go to anybody, so I think she was really pleased! 

We left quite early on Sunday, just so we knew Jacob would sleep on the way home as he doesn't do well on long car journeys! He was really unsettled at bedtime last night too, which we half expected, but he did stay in his own cot until 5am, which wasn't too bad. I did bring him in with us, mainly because I knew after the late nights at the weekends, he needed more sleep, and he crashed straight out again until 8am, which was lovely!

There were so many lovely photos from this weekend so I apologise in advance if you get bored looking through them!